Muscular
Dystrophy - A Genetic Killer...
Muscular Dystrophies are defined as a group of human
genetic disorders characterized by progressive muscle
wasting and weakening and microscopic changes in the
muscle. It is the disease that affects the muscles of
an individual. Muscular dystrophies are part of a larger
group of disorders known as Myopathy.
The primary problem with Myopathy including muscular
dystrophies, basically concentrates in the muscles not
in the nerves that control them, the blood vessels that
supply them or the bones that support them. This distinguishes
dystrophies from other various conditions that affect
muscles.
Muscular Dystrophy (MD) causes muscles to get weaker
and weaker. Later on they don’t work at all and
the patient’s survival became rare within the
normal age. The death comes from the Pneumonia, Lung
(Respiratory) and Heart complications caused by weakness
of the muscles Even our heart is a muscle, and Muscular
Dystrophy affects that too. However, our brain is not
a muscle so it will not be affected. A continued research
activities are on going in developed countries with
great initiation as there is no known cure for these
muscular or neuromuscular diseases yet.
Establishment
Of Mdf-Nepal
The MDF-NEPAL is a Non- Profit making voluntary organization
registered in HMG District Administrative office, Lalitpur
on 2003. MDF-NEPAL is formulated in initiation of Parents
Projects Muscular Dystrophy (PPMD-Nepal) and Social
workers. This foundation is dedicated for the services
of the patients with MD for rehabilitation approach
and creating social value. MDF-Nepal's national head
office is in Jwagal, Kopundole, Lalitpur, Nepal.
MDF-NEPAL's programs are initially funded entirely
by individual / private contributors of the country.
Mission
Create nation-wide awareness of the disease, find viable
treatment and cure for MD, establish rehabilitation
activities and streamline the stakeholders with latest
development.
Vision
A social support system with utmost self-reliance.